Nov 1, 2013

This Ain't Your Granny's Diabetes

November is National Diabetes Awareness Month! For some of us, so are the rest of the 11 months out of the year.  For me, this is one month I get excited about. I like to try and educate at least one person to the world of diabetes. To give them a glimpse into our family life. To dispel myths.

This was my first introduction into diabetes:



ahh! Yes, Wilfred Brimley. And good heavens, man! It's pronounced: Di-a-be-tes... So as a kid I thought old people got it.

If this is your perception of what diabetes is...erase your memory, bleach your eyes out...do anything that will get rid of what you think diabetes is.

Wilfred Brimley is just ONE face of diabetes.

There are so many others. Faces that are young, old and in between.

This ain't your Granny's diabetes.

Diabetes IS...

for Type 1 diabetes (T1D) it is an autoimmune disease. The pancreas no longer makes insulin and therefore blood glucose cannot enter the cells to be used for energy. T1D patients did NOTHING to cause them to get diabetes.

for Type 2 diabetes (T2D) either the pancreas does not make enough insulin or the body is unable to  use insulin correctly. There is a big genetic component to T2D. It's not just for the obese. If that were the case everyone who was considered obese would be diagnosed as Type 2. There are plenty of fit, thin people being diagnosed with Type 2.

For both types there is NO CURE. I don't care what you read on the cover of Women's Daily as you are waiting in line in the checkout at the grocery store. Diabetes canNOT be reversed, grown out of or disappear when eating salad.  Diabetes is a serious disease...no matter the type.

What I would like you to know is both types suck. Who wants to have to worry about taking blood sugars, taking insulin shots or pills everyday...sometimes several times a day. If you or your loved one live diabetes you know what I'm talking about...if you received this because a love one or friend shared it with you please take the time to educate yourself about diabetes.  I encourage you to ask questions. Help us dispel the myths about diabetes. Help us raise awareness for diabetes.

Sep 5, 2013

Destination ME

Our friend Hallie, from the Princess and the Pump, has made a declaration of ME time. You can read about it here and join in for some ME time. Our lives are SO consumed by diabetes. We are so worried about carb counting, insulin bolusing, site changes, insurance coverage, Dr. appointments...the list goes on and on that we hardly take time for ourselves.

I have joined Hallie and some other wonderful people in her Destination ME challenge. You can read about my challenges here as I am posting in my other blog: Captain Jackson's Hemophilia Adventures. This week I have decided to start running again...well I walked more than I ran today. BUT I found ME time! It doesn't have to be physical. You can find ME time reading a book, learning to knit, painting...what ever. The goal is to find time for YOU. I found an hour today but I may only find 30 mins tomorrow. I have already thought of other things I want to do to find me time. I want to paint a canvas for our newly remodeled bathroom. I want to read some books. I want to go shopping for some cute fall BLUE shoes. I want to learn to knit...but that requires patience...and I'm not there yet! I'm thinking ahead of finding ways to find time for me and in doing so I know I'll feel better about myself. I'll be a better mom...not so on the edge.

So I encourage you to join Destination ME!! You can join via Hallie's blog page, you can comment below or comment on our FB page. We would love to know what you are planning for your ME time as we would like to cheer you on!!

Good luck and Happy Me time!

Aug 28, 2013

DiabetesCare.net Beta Test



For those whom participated in the Beta test of the DiabetesCare.net App, please make sure and visit and take the Survey as a follow up to the Beta test. 

Also, they are looking for two people to also conduct an Interview for a followup. If you participated and would like to be considered for the Interview, please send an email  indicating your interest for the Up Close story on the tracker.

We are very pleased to also be planning to work with DiabetesCare.Net after the Beta test Project, and you will be hearing more about that in the very near future.

About DiabetesCare.net From the  'About' Page:
Our name says it all - we help you to take care of your, or a loved one or friend's diabetes - and we willhelp!
Use DiabetesCare.net daily as a personal resource to learn, explore, ask questions, interact and share your experiences of living with diabetes, or caring for people with diabetes.
DiabetesCare.net is also your one-stop location to track your health with our free-to-use tools, find others you want to communicate with about your, or a loved one or friend's diabetes, and gain access to healthcare professionals.
Bottom line, DiabetesCare.net, which contains no commercial advertising whatsoever, and therefore that means no bias, just useful information and support, is a friendly and interactive medically-based website offering practical information to take care of your, or a loved one or friend's diabetes. We strive every day to provide you with the resources you need to deal with diabetes so you and/or your loved ones and friends can enjoy the best quality of life.
DiabetesCare.net is a 100% philanthropic project funded by Robert Schwartz, who declares no interest with any other organization related to diabetes.


Aug 21, 2013

Tell Congress to Strip Safely!!

In the last month or two you may have noticed people's FB status updates stating "Strip Safely". While I know some of you went there...in the gutter...with thoughts of stripper safety this Strip Safely is about diabetes! It's about the blood glucose strip that you or your love one uses to receive their blood glucose reading.

For those of you who read this blog and don't deal with diabetes daily a blood glucose meter is a hand held device that you insert a little test strip in. You poke your finger with a lancing device; apply the drop of blood to the strip and wait 5 seconds for a blood glucose reading. 

So what's up with the new campaign? (You can read about it here.)

It's about safe, ACCURATE, glucose readings.

Did you know the FDA allows a +/- 20% variance in accuracy? What does this mean? Imagine a thermometer. You insert the thermometer to get an accurate temperature reading. If it reads over 100 you will most likely take some Tylenol, drink fluids and apply a cool compress. If it reads over 103+ you are calling your Doctor with a possible ER visit. IF the FDA allowed a +/- percentage variance with thermometers how would you know how and when to treat a fever? If 103 isn't really 103 how do you know what to do and if you should call a professional?

In comes the test strips. On average diabetics take their blood sugar 6-8 times a day...that's AVERAGE. There are days we test 6-8 times in the span of an hour. Diabetics look at this blood glucose reading and determine how they will treat that number. If it reads a 50, that's low, you will treat with a fast acting carbohydrate. If it reads between 80-120 your golden...you do nothing. And if it reads above 120 you will administer insulin to bring your glucose down.

Now, throw in the fact there is a +/-20% variance. Prime example: last night I was up most of the night battling low blood sugars with Nora. At 10pm she was 120 with no active insulin. This is PERFECT! Just an hour and a half later her MySentry is reading an 82. This is NOT good for Nora. I go upstairs to test and find she is actually in the mid 60's (I know...that's another post for a different day!!) So I give her a juice and set a temp basal (this reduces the amount of ongoing insulin she receives). I go back downstairs and watch the MySentry. It hoovers at 62. I recheck in 15 minutes to find her blood glucose has not budged. It goes on like this for a good hour. Checking, drinking juice, more temp basals, hoovering, checking, juice, slowly creeping up. Finally she reaches 124 set a temp basal and I'm feeling confident she will make it through to the 3am check. Glorious (you can hear the sarcasm dripping as you read that, right?) 3am check comes and she is back down in the 80's!! Repeat above steps. First day of school today and we are up at 6am! I look at the MySentry and it reads 82. Throw some blueberry muffins in the oven and go to check on her and wake her up. Again, 62!!!! Ugh!!

The reason I'm giving you this blow by blow description of how diabetes worked last night is this...since there is an allowable 20% variance in test strips, is a reading of 62 really 62 or is it a 74 or worse...a 50!!! See what I mean? That's a big difference when you are treating a low or even treating a high.

How are we as caregivers, or even as diabetics, be held accountable for diabetes management if there is such a variance? Because I can tell you I would treat a glucose of 74 different than I would a 50. Yet our Endo's are looking at us and wondering why we aren't "controlling" diabetes!

This is how you can help. Make your voice be heard. Write your Congressmen. Let them know this IS important and why. Urge them to send their Health Aides to the Diabetes Technology Society Meeting September 9th. Heck, if your savvy enough...tweet your Congressmen! Here is the link to send your tweet.
You can also join in a twitter-in tonight, Wednesday, 8/21, at 8pm EST. Educate and Advocate. It's up to us to tell Congress we need to Strip Safely!

 

Aug 5, 2013

Walk the D Walk...

Friday I ran into WalMart with the hubby and my son. I needed to get a few things for the girls who are away at diabetes camp for the week!!! Woo hoo!! (and yet, here I am, not having to worry about ANYTHING D related and I'm writing this blog...it's a habit...can't help it!) So we parked the car and spotted an ambulance parked by the entrance with it's lights on. No telling what happened...our WalMart is ever so adventurous! We walked in and D smacked us in the face. This gentleman had passed out (but had come to by the time we entered) from a low. How do I know? The paramedics were pricking his finger and applying that little blob of blood on a test strip; asking him if he felt better. Instantly, Joe looked right at me. We don't even need to say a word. I get a little teary eyed and just keep walking. But my D Momma instincts were on high alert. I wanted to go over there and make sure that man was okay.

Isn't that one of our fears?

It is for me anyway. Not being able to help my girls if they go too low. Passing out. Not being able to get enough carbs in them to bring them up. Administering glucagon. Some of you are shaking your heads...you've been there and done that.

A few months ago, my hubby was able to assist an elderly gentleman who had a severe low and about cracked his head open on the floor of the local grocery store. He just happened to walk by this man and his wife and saw the man's legs give out. He was able to catch him. His wife said, "juice" and Joe laid him down on the floor and ran for the OJ aisle. Came back, pried his mouth open and forced OJ down this man's throat. He had called me right after as he was extremely shaken by the incident. I immediately teared up as we both were thinking the same thing...that could happen to our girls.

It's an incident that shakes us to our core. Sure, others could walk in and look at the man pricking his finger and go about there business. Not knowing what happened or caring less. But those of us that walk the D walk know all too well.

Diabetes is REAL.

It's SCARY.

It's LIFE altering.

It's DEADLY.

And since I can't seem to erase the WalMart scene from my head I will focus on my two girls who are having a BLAST at D camp this week. I know they are well cared for. They are surrounded by other diabetics and medical staff that can help if need be but still remembering that D can show it's ugly head when you least expect it.

and what am I still awake for?!?!? No midnight or 3am checks this week baby...off to relax...